Monday, February 9, 2009

The Price Quoted in the Autism Partnership article

The price quoted in the Autism Partnership article http://www.cnn.com/2009/HEALTH/02/04/autism.resolution/index.html?iref=mpstoryview
sent earlier today is not correct. The article says the price for therapy is $20,000 per week. It has been confirmed that this was a typo in the article.

Nevada Lawmakers

Nevada lawmakers hear emotional pleas for autism treatment funds
Nevada lawmakers had an emotional day of testimony Friday, as families affected by autism pleaded with legislators to continue funding treatment for the developmental disease. Last session, the legislature allocated $2 million to treat children with autism... http://www.kvbc.com/global/story.asp?s=9804513Find more items like this at http://www.kvbc.comCopyright 2009 KVBC


PARENTS AND FRIENDS:

First, I want to say a BIG Thank you to Cierra!!!! For the powerful testimony your letter made. They heard you!!

We can all make a difference; it only takes one letter to change their minds. Yours could be the one.
Please take Cierra's example and write or call your Legislator. Ask them to support ALL the bills for Autism!!! Yes, it is very exciting; we will have more than one bill.

I have provided group email addresses for you, so it will be easier, one letter to Assembly members and one letter to Senators. Dear Senator: or Dear Assembly Member:
Please be polite, let them know you would appreciate their support. Make sure you include your name and address; it matters to them if you live in their district. BRIEFLY SHARE YOUR STORY and why it’s important to you.


The Bill for insurance coverage will be introduced next week. I believe it is one of the strongest bills among all the Autism insurance bills, Autism Speaks likes it too! They will be helping us at Legislation.
Once the bill is introduced, it will be available on line to download and read at http://www.leg.state.nv.us

The insurance bill specifically covers screening and diagnosis of Autism Spectrum Disorders and treatment
"Treatment of Autism Spectrum Disorders" means habilitative or rehabilitative care (counseling, guidance and professional services and treatment programs, including, applied behavior analysis)
pharmaceutical care, psychiatric care, psychological care or therapeutic care (speech ,OT, PT)

I will keep everyone updated and provide on going information. I plan to give an outline of what each bill will provide once we have more details. I don't want to misinform you, so please be patience.
As soon as I know, you will know. Please if you have questions or concerns call me at 702-595-2067

One Voice, One Cause

In hope,

Jan Crandy
NV Commission on Autism Spectrum Disorders

WHEN EMAILING BE SURE TO LIST AUTISM IN THE SUBJECT area


To email all Assemblymen Just copy the below addresses and paste as a group into the "To" box

paizley@asm.state.nv.us;banderson@asm.state.nv.us;marberry@asm.state.nv.us;katkinson@asm.state.nv.us;info@davidbobzien.com;bbuckley@asm.state.nv.us;jcarpenter@asm.state.nv.us;cchristensen@asm.state.nv.us;jclaborn@asm.state.nv.us;tcobb@asm.state.nv.us;mconklin@asm.state.nv.us;mdenis@asm.state.nv.us;mdonderoloop@asm.state.nv.us;hgansert@charter.net;goedhart4assembly@hotmail.com;pgoicoechea@asm.state.nv.us;tgrady@asm.state.nv.us;dgustavson@asm.state.nv.us;jhambrick@asm.state.nv.us;jhardy@asm.state.nv.us;sanjoe@embarqmail.com;whorne@asm.state.nv.us;rkihuen@asm.state.nv.us;mkirkpatrick@asm.state.nv.us;ekoivisto@asm.state.nv.us;sleslie@asm.state.nv.us;mmanendo@asm.state.nv.us;amastroluca@asm.state.nv.us;rmcarthur@asm.state.nv.us;kmcclain@asm.state.nv.us;hmortenson@asm.state.nv.us;hmunford@asm.state.nv.us;joceguera@asm.state.nv.us;johrenschall@asm.state.nv.us;bparnell@asm.state.nv.us;ppierce@asm.state.nv.us;tick@cox.net;jsettelmeyer@asm.state.nv.us;dsmith@asm.state.nv.us;espiegel@asm.state.nv.us;lynnstewart@cox.net;melissa@woodburyforassembly.com



To email all the Senators at once Just copy the below addresses and paste into the "To" box

mamodei@sen.state.nv.us;sbreeden@sen.state.nv.us;tcare@sen.state.nv.us;mcarlton@sen.state.nv.us;bcegavske@sen.state.nv.us;bcoffin@sen.state.nv.us;acopening@sen.state.nv.us;whardy@sen.state.nv.us;shorsford@sen.state.nv.us;jlee@sen.state.nv.us;bmathews@sen.state.nv.us;mmcginness@sen.state.nv.us;dnolan@sen.state.nv.us;dparks@sen.state.nv.us;wraggio@sen.state.nv.us;drhoads@sen.state.nv.us;mschneider@sen.state.nv.us;rtownsend@sen.state.nv.us;mwashington@sen.state.nv.us;vwiener@sen.state.nv.us;jwoodhouse@sen.state.nv.us


Autism affects 1 in every 150 children.....Care before you have to...

A Blog for Everyone to Enjoy

I just found a new blog. It is www.kathiesworld.com Very informative. Please take a look and enjoy.

Saturday, February 7, 2009

Enjoying The Moment

"What can . . . young mother[s] [do] . . . to reduce the pressure [of raising young children] and enjoy [their families] more? . . .
"Recognize that the joy of motherhood comes in moments. There will be hard times and frustrating times. But amid the challenges, there are shining moments of joy and satisfaction.
"Author Anna Quindlen reminds us not to rush past the fleeting moments. She said: 'The biggest mistake I made [as a parent] is the one that most of us make. . . . I did not live in the moment enough. This is particularly clear now that the moment is gone, captured only in photographs. There is one picture of [my three children] sitting in the grass on a quilt in the shadow of the swing set on a summer day, ages six, four, and one. And I wish I could remember what we ate, and what we talked about, and how they sounded, and how they looked when they slept that night. I wish I had not been in such a hurry to get on to the next thing: dinner, bath, book, bed. I wish I had treasured the doing a little more and the getting it done a little less' (Loud and Clear [1004], 10-11)."
M. Russell Ballard, "Daughters of God," Ensign, May 2008, 109

Friday, February 6, 2009

Toy "R" Us Inc., Expands It's Support of Autism Speaks

Toys“R”Us, Inc. and the Toys“R”Us Children's Fund have increased their support of Autism Speaks. This year, more than 260 Babies“R”Us locations nationwide will join Toys“R”Us stores in a nine-week in-store fundraising campaign to coincide with Autism Awareness Month in April. To kick off the 2009 partnership, the Toys“R”Us Children's Fund also awarded Autism Speaks a $400,000 grant. Since the partnership began in 2007, the Toys“R”Us Children's Fund, Toys“R”Us, Inc. and customer donations have combined to provide Autism Speaks with more than $3.7 million. Read more.

Wednesday, February 4, 2009

Nevadans for Quality Education

Nevadans for Quality Education is participating in the “Not on Our Backs” rally hosted by the Clark County Education Association (CCEA) on Saturday, February 7, 2009. The rally will be held in the gym at Chaparral High School at 10:00am.

In the last year, K-12 education lost over $180 million due to the Governor's budget cuts. To add insult to injury, the Governor is now proposing 6% pay reductions, freezes on step increases and higher benefits costs for all state employees including teachers.

We are very concerned over the mounting teacher shortages and the number of long term substitutes attempting to educate our children without the proper training to do so. NQE believes that the ability to attract and retain highly qualified teachers is paramount to student achievement. But with the ongoing cuts and reductions in pay and benefits for our educators, Nevada is quickly becoming an unattractive place to live and work and raise our children. Our state must adequately fund education in order to provide our students with quality teachers and sufficient resources to become successful.

Please attend the rally to support our teachers, because doing so supports our children and their future.
For more rally information, visit: www.ccea-nv.org

State of Nevada; Human Services

SENATE FINANCE/ASSEMBLY WAYS AND MEANS
JOINT SUBCOMMITTEE ON HUMAN SERVICES/CIP

Day Friday Date February 6, 2009 Time 8:00 a.m. Room 3137
If you cannot attend the meeting, you can listen to it live over the Internet. The address for the legislative website is http://www.leg.state.nv.us. For audio broadcasts, click on the link “Listen to Live Meetings.”
Note: We are pleased to make reasonable accommodations for members of the public who are disabled and wish to attend the meeting. If special arrangements for the meeting are necessary, please notify the Senate Subcommittee on Finance at (775) 684-1488.
(R#) Indicates the reprint number of the bill/resolution being considered.
PLEASE PROVIDE 30 COPIES OF YOUR EXHIBITS AND NOTES.
Cellular telephones must be turned off while in the committee room.


BUDGET HEARINGS
VOLUME II
Executive Budget Page
Department of Health and Human Services
Michael J. Willden, Director
HHS – Administration, 101-3150
DHHS Director’s Office-1
HHS – Grants Management Unit, 101-3195
14
HHS – Healthy Nevada Fund, 262-3261
31
HHS – Public Defender, 101-1499
43
Indian Affairs Commission, 101-2600
50

Aging Services Division

HHS – Developmental Disabilities, 101-3154
AGING-37
HHS – Community Based Services, 101-3266
49
HHS – IDEA Part C Compliance, 101-3276
59